We had a great Easter weekend at the lake. As soon as we arrived Friday, we tested out the cooling vest & it worked. Trace was able to play outside - yay! He played in the lake, which was way too cold for me, but he loved it. Peyton brought a friend and they also braved the cold water.
The bunny was generous this year and brought lots of goodies & a paddleboat, which the kids really enjoyed.
Trace tired himself out quickly & went to sleep about 6:30, with no seizures, and only woke up about 4 times! We all enjoyed another day of fun Saturday. Trace had a really hard time falling asleep and had seizures on Saturday night. This is the first time he has had more than one seizure since adding the Clonazepam. I really want the Clonazepam to work, I can't stand watching him have seizures, and the regression that they bring. His development has been great since the seizures have subsided. He's even said some new words - school, splash & roar! He woke several times and was up early Sunday AM. We went to church, which was nice because we haven't been in a long time. Trace does not do well in church, he doesn't like to be in a loud or crowded environment, stinking autism! Thomas & Boompa traded off taking him outside because he would just cry. We did keep him in long enough to go to communion and receive a blessing though. Trace napped and then we had lunch & the egg hunt. He woke up pretty tired and was not getting around so good for the egg hunt. He decided to drop the basket and crawl. I piled a few eggs in front of him so he didn't have to work so hard. He didn't much care about the eggs - but loved to smash the half melted chocolate inside & lick it off his fingers! Peyton had to take care of hunting the rest of the eggs for him - what a sweet Sis!