Thursday, December 13, 2012

Happy Birthday Trace!! & Thomas!!

My baby is 5, I can't believe it!  This past year has probably been his best so far.  He's worked so hard this year which has lead to some great developmental progress.  Thank you to all Trace's therapists and teachers for never giving up on my baby and challenging him every week.  His health has been at an all time best this year too.  Thanks to his wonderful doctors and nurses who make sure he's receiving the best care and treatment possible.  Trace has managed to stay out of the hospital and healthy for the longest streak ever.  This is most exciting!!  It has really given me hope.  I live everyday of my life to make his better and seeing it finally get better is AMAZING!

We celebrated his birthday this weekend with lots of friends and family at Chuck E. Cheese.  Trace loves CEC!  This was by far the best birthday ever - he interacted with CEC, played lots of games, opened presents, ate some pizza and for the first time ever blew out his own birthday candle!!  If you can't tell I'm super excited about that and think I even yelled it out with excitement that day.  It's all about the little things right?? 









We also took family photos this weekend with Stephanie k Photography.  We were unable to do them last year because Trace was admitted to the hospital and I never rescheduled as it took him a while to totally recover.  Despite Trace not being very cooperative, constantly moving, and our family being the traveling circus it is, I have some truly amazing photos.  Stephanie is one talented photographer!  Her love for photography really shines in her work.  In her words - there are the funny moments and the serious moments and the sweet moments and they are all real and they are all a story about your family.  A huge THANK YOU!! to Stephanie k Photography for giving us these beautiful pictures which will tell our story forever.  And for her generosity in donating her fees to help fight Mitochondrial Disease.  Thank you again sweet friend!






After family photos we headed out to the christmas tree farm.  We decided we would start this new tradition for our family.  I'm happy we did because it was a lot of fun!  Trace loved the hayride and helped daddy cut down the tree.  Well he helped by rubbing dirt in Daddy's hair as he was cutting the tree.  I thought it was funny, Daddy did too, well probably not as much as I did :-) 

As far as Trace's December 13th, he spent it getting casted and fitted for ground reaction ankle foot orthotics.  Not something I want for him.  We've tried AFOs before and they were really hard for Trace to walk in and caused him to fall down a lot.  I hope he does better this time and they don't hinder his ability to get around.  It took him 5 years to get himself around good and I don't want to see him struggle.  His orthopedic doc is proud of how he has compensated for all of his disabilities, but feels he really needs the ground reactive AFOs.  Regardless of all the AFO stuff I was able to spend the day with sweet baby.  Happy Birthday Mister! 


Since Thomas was lucky enough to receive the best birthday gift ever 5 years ago, he doesn't get much attention anymore on December 13th.  So here are birthday wishes for my sweet husband, best friend and the best Daddy ever - HAPPY BIRTHDAY THOMAS!!  Wishing we could spend it together, but I'll see you soon my love. 



Hope, Love, Courage &Faith,
Laurie

Monday, December 10, 2012

"Putt" An End To Mito 2012

It gives me great joy to announce "Putt" An End To Mito was another successful golf tournament!!  The tournament raised $17,125 for the University of Texas Mitochondrial Center of Excellence at Children's Memorial Hermann Hospital.  This money is going to help accomplish some great things for Trace and all his "Mito Friends". 

It was a cold windy day, but despite the weather the tournament was full.  It was hard to hold back the tears of joy seeing how many people showed up to support my sweet Mister.  Clinic director, Mary Kay Koenig MD, spoke before tournament play to raise awareness of Mitochondrial Disease.  Due to the hard work of some wonderful people, we had some amazing raffle baskets this year.  Everyone had a great time playing and headed back in the club house for dinnner.  As everyone enjoyed dinner, we announced and awarded prizes to the top 10 teams and drew for all raffle prizes & baskets.  We ended the evening having a great time with all of our family & friends.  It was an amazing day!! 

I want to extend a huge THANK YOU!! to all of the players, sponsors, volunteers, everyone who made donations and all of our family & friends who helped make this tournament such a success.  I can't wait until next year!!! 

Trace presenting Dr. Koening with the "big check"


Hope, Love, Courage &Faith,
Laurie

Wednesday, November 28, 2012

Thanksgiving & Updates

I'm not even sure where to begin here, so much has been going on since my last post.  I started November with 1 doctor appointment on the calendar.  I was extremely excited about that due to the rarity.  It quickly turned into 8 appointments all in the medical center.  Let's just say I'm broke from filling the car with gas and parking alone! 

Trace has continued to do well.  He had some labs drawn this month, which I feel certain will all come back normal.  He received his flu shot on November 7th.  He did well with it, only having a few small seizures and low grade fever.  Three days after the shot he acquiried a runny nose and cough.  He still has it, but hasn't progressed into anything more.  It just takes him a really long time to get over things.  It doesn't help that I've had to discontinue use of his Veramyst due to some terrible nose bleeds the last few weeks.  I guess we're going to have to discuss some other options with Dr. P next week.  Trace has been repeating everything lately.  He's like a little parrot!  A couple of cute examples - "love you" (getting better everyday), yelling "check" over and over again at a restaurant (which in Trace language sounded like suck - real fun!), and "oh man" (oh nee in Trace language). 

Peyton received some great news last week.  After giving 17 viles of blood for numerous labs (more than I've ever seen ordered and believe me I've seen a lot), chest xray, echocardiogram, and a biopsy she has been diagnosed with erythema nodosa.  This form attacks the fatty tissue of the body.  This is a much better diagnosis than what they had earlier thought which attacked arteries and some organs.  I'm so very thankful for this!  I never wanted her to have even the smallest thing wrong, but I'll take this over those really awful things any day.  She's going to be just fine - and that feels so good to say. 

On to Thanksgiving - This year we chose to stay home.  After all the craziness that has been going on, I didn't have it in me to go anywhere.  I just needed some quality time with my hubby and kiddos.  It was a great decision for all of us.  We cooked our first Thanksgiving dinner, which turned out delicious!  Trace didn't partake in the food - his tummy wasn't feeling the greatest and there is no getting him to eat when he's like that.  So it was chocolate pediasure for our little Mister.  I was sad because I made him some special dishes to enjoy - oh well maybe next year.  He didn't eat anything until Saturday, then he pigged out on Thomas' cheese enchiladas. Which he would not eat off a spoon, only Thomas' fingers :-)  I'll never understand that child.  Unfortunately, I'm terrible at taking pictures and forgot to take any of our Thanksgiving - oh well maybe next year :-)  Seems to be the story of my life lately.  Thomas and I sat by the fire that evening and talked about what we were thankful for.  We have so many people and things to be thankful for.  After my best friend gave us a little scare this month, it made us appreciate even more how lucky we are to have her in our lives.  I'm so dependent on her because no matter what's going on in her own life she has always been there for me.  I only wish to one day be as great of a friend as she has.  We have a beautiful, warm, functional home for our family.  We have each other - no matter how hard times get - we haven't given up on each other yet!  That's a real accomplisment with all the stress of our everyday life.  Our everyday life - no matter how hectic, stressful, and worrisome it may be - it's also full of strength, joy and love.  Our two beautiful children - the biggest blessing of all. 

Not the best post but I'm finding it really hard to have any spare time to update the blog right now.  One more appointment before the end of this month and then on to December, which as of now only has 3 appointments scheduled.  Really hoping to keep it that way!  The next post should be better - I'll be posting on "Putt" An End To Mito 2012.  I'm so excited to be presenting the check to the Mito Clinic next week.  I don't want to say how much yet because I want it to be a surprise to them, but yes it is bigger than last year!!!!!!  Thanks again for all of your support, it means the world to so many children.

Hope, Love, Courage &Faith,
Laurie
 

Monday, November 5, 2012

Halloween 2012

Well I have to say Halloween 2012 was a success!  Trace actually understood the concept this year, which made things so enjoyable for him.  Dr. Trace would start to stand up in his wagon before it was good and stopped.  I helped him out and he went as fast as he could, smiling the whole way, up to the house to receive his candy.  I spoke for him, but he did sign/say lots of "tank oohs" :-)  He was so cute and scored more candy than ever needed for someone who's tummy can't handle too much sugar.  I of course let him completely overindulge himself.  That's one of the best parts about being Mommy - overindulging my kiddos.  I think I smiled more than Trace that night.  As I rocked his fidgety little body to sleep that night, happy tears welled up in my eyes.  I couldn't believe what I had witnessed my little Mister accomplish that evening and with such joy on his face.  Two years ago I wasn't sure anything like last night would be possible for my Mister.  I guess he showed me!!  Here are some pictures from our Happy Halloween!

Helping Sis make scary cupcakes

Sis helping Dr. Trace get ready

I can't believe he let us put the mask on, even if only for a few seconds!

He even held his own pumpkin this year!

Loaded up and ready to head out

He wasn't even scared of this guy - last year different story

No time for chatting Mom - more candy


Last pic of the night - One happy little Mister


Hope, Love, Courage &Faith,
Laurie

Tuesday, October 30, 2012

My Healthy Child

What's up with my healthy child?  At the beginning of October Peyton came to me with what she thought at the time were 3 bruises on her shin.  I joked and told her to try not to be such a klutz.  A week later she had these so called bruises up and down both legs and one arm.  She was experiencing pain when touched and swelling.  She had also been complaining of stomach cramping and feeling like she was going to pass out.  I felt this was some sort of inflammation of her glands or blood vessels - definitely not bruises or a rash.  I took her to the pediatrician the following morning.  He examined her and said he hasn't seen it in 30 years.  "It" turned out to be Polyarteritis Nodosa.  An autoimmune disease which causes inflammation of the arteries, among other things if not treated properly.  This didn't suprise me, or alarm me for that fact.  Honestly I laughed and said only the weirdest of the weird for my children!  He said "Well Laurie they are YOUR children."  Ha Ha doc!  He told me to give her ibuprofen and call back if she runs fever or vomits.  I took Peyton to lunch and did some research.  I didn't like what I read regarding long term effects of the disease.  There were also better treatment options.  Peyton has had some problems with use of ibuprofen in the past and taking as much as he prescribed can't be good for that.  I decided we need a second opinion.  I called Trace's immunologist and she referred me to rheumatology.  Peyton will be seeing the rheumatologist Dr. K, who works in the clinic with Trace's specialists.  I know this is the best place for her to be.  During my week of inpatiently waiting to see when Dr. K could fit Peyton in, I called the appointment line to see when his first available was. It was 1 year for new patients!  I guess Mito has it's perks!  Peyton's appointment is next week so we'll see what happens. 

On Friday, Trace's mito specialist attended our golf tournament benefit for the clinic.  I was able to show her Peyton's legs and arm.  She let me know that a lot of siblings of mito patients have autoimmune issues.  She also assured Peyton she doesn't have to worry all weekend because she doesn't have Mito :-).  I honestly think Peyton was a little relieved to hear that.  I don't blame her - what she has seen this disease do to her brother and other children would scare anyone.

So that's that - my healthy girl - not so healthy right now.  I have to give her some props though, she's one tough cookie.  She has continued to cheer & dance as much as her body allows.  She had to miss cheering at the game Friday due to the pain and swelling.  She has never missed cheering at a football game.  She's cheered through fever, flu, stomach ache, torn ligaments, you name it.  I know the only thing that got her through missing the game was being at her brother's golf tournament.  She didn't miss the pep rally though!  I love that crazy girl!!



Hope, Love, Courage &Faith,
Laurie
 



Friday, October 5, 2012

Two Years

Today marks the 2nd anniversary of Trace's diagnosis with Mitochondrial Disease.  My heart aches today.  I've been trying to not think about it all week, but it's in my mind always.  I think about how horrible Mito is, how "lucky" Trace is, how that day played out, how blessed we are to still have him here with us, how awful I feel for the parents whose babies have grown their angel wings way too soon, what I can do to make these childrens lives better . . . 

I believe when you have a child with a disease like Mito you live the process of grieving over and over and over.  It never stops.  You're in denial, angry, sad and accepting.  It's so true for me.  I lived through this process so many times over the last two years.  I try to stay positive & accept this is just the way it is - the way it was meant to be for us.  I've learned it's best to live in that stage as much as possible.  But when I get hit with something new, for instance Trace starts experiencing a new type of seizure, I start it all over.  I can't help it, I try not to be sad or angry, but I guess I'm human after all.  There's been times within this last year that I've even thought "Does Trace really have Mito? Or is this some big mistake?" and then I answer myself "Really? Are you serious?".  I've even asked his mito specialist if she was sure of Trace's diagnosis.  She gave me a kind smile and reassured me he does in fact have Mito.   Lucky for me I have a wonderful support system of family and friends to help me go through this process of grieving over and over and over again.  Oh yeah, and a good therapist too :-)

This past year has been filled with much of the same as the year before - sleepless nights, tons of doctor appointments & therapy, hospitalizations, tests, dosing lots of meds, etc., etc.  But it's also been filled with Trace becoming way more verbal than he's ever been before, achieving some of his goals for speech & occupational therapy, making wonderful memories, lots of family time, eating at restaurants with Trace, snuggling, and best of all lots of hugs & kisses.  I feel Trace has come a long way in the last few months.  The first few were a bit unsteady with lots of regression from his illness and hospitalization in December.  Then everything seemed to level out and Trace has really thrived.  I'm so proud of my little boy to have come so far in such a short period of time.  He amazes me every single day.

What will this next year bring?  I don't know.  I do know that I will stay as positive as possible, enjoy every moment of every day & sleepless night, fight for Trace as hard as he fights, cherish every single skinny-armed hug and sweet kiss he gives, and even love the bad moments because although bad they are still moments we have together. 




Hope, Love, Courage &Faith,
Laurie
 
   

Wednesday, September 19, 2012

Mitochondrial Disease Awareness Week


On October 5, 2010 our lives changed forever - Trace was diagnosed with Mitochondrial Disease.  It took us a relatively short period of time to reach this diagnosis.  For many people Mitochondrial disease can take many years to diagnose.  This ugly disease can present itself at birth, childhood or as an adult. 

I know it seems long, but here is a very short summed up version of how Trace got his diagnosis of Mitochondrial Disease. 

2 months - Trace developed reflux, he would taked hours to eat just a few ounces, and then projectile it all back out.  He would scream for hours each night. 

9 months - Trace started holding his head to one side a lot, told it was due to reflux.  Trace received his first half of the flu shot at his 9 month checkup.  A few days after the checkup Trace started jerking his arms/legs when falling asleep - we didn't think too much of it.  Trace had been meeting all of his developmental milestones through this age.

12 months - Trace received his one year vaccines and the second half of the flu shot.  Three days after the checkup he started having generalized seizures.  He had his first one hour EEG on Christmas Eve.  Trace continued to have seizures daily.  We were referred to a pediatric neurologist, the first appointment we could get was 4 months away.  Trace's development completely stopped.

13-15 months - During this waiting period to see the neuro I kept a daily journal of Trace's activities.  Logged everything he ate, drank, meds, bm's, and all seizures.  Trace is still taking a bottle due to the fact he refuses solid foods most of the time.  Trace looses speech development.

16 months - Trace had his first visit with the pediatric neurologist.  Trace was not having a good day and had around 50 or more seizures during the course of the day.  Trace had his 2nd one hour EEG with abnormal results.

17 months - He had his first 23 hour EEG.  He is still not developing.  He has ataxia, extremely loose joints, is not responsive a lot of the time.  He experiences constipation or diarrhea daily. 

19 months - Trace had his hearing tested due to lack of speech and balance problems - normal results.

20 months - First MRI.  It showed no evidence of strokes or anything else glaring as the reason for seizures.  Trace was put on Trileptal to help get seizures under control.  We were told we may never know the cause or what type of seizures Trace experiences. 

21 months - Trace stared receiving speech, physical and occupational therapy to help his development.  He had his first eye exam with good results.

22 months - Trileptal no help and Trace's seizures become more violent.  05 Oct 2009 Trace was admitted to the hospital's Epilepsy Monitoring Unit for a 3 day EEG.  During this stay he was poked 16 times for numerous genetic tests & other labs, had two IVs placed,  MRI, MEG, and not to mention all the leads glued to his head for 72 hours.  We met Trace's  epileptologist Dr. V during this stay.  She visited Trace a couple times per day to check on him.  I felt so bad for my baby during this stay.  He had too many seizures to count.  We left with a diagnosis of Myoclonic Epilepsy.  We were sad he had epilepsy, but happy we had a diagnosis.  I felt I could fix him now - little did I know, I will never be able to fix my baby.

24 months - Trace started walking - gait was still wide, not always steady, but he could do a few steps alone.  It was a huge milestone!  He was also taken off the bottle at this time.

26 months - First appointment with his peidatric orthopedic to discuss the use of leg braces.  Since Trace couldn't yet perform tasks on command, Dr. Y wants to evaluate again in 6 months.  Trace did eventually end up with Ankle Foot Orthotics - they were no help.

27 months - Visit with Dr. V to discuss some labs.  Due to high pyruvate, extremely high lactic acid (27), myoclonic epilepsy, developmental delay, GI dysmotility, and hyperextensibility she told us Trace could possibly have Mitochondrial Disease.  This was the first time I had ever heard the words Mitochondrial Disease.  My first question - "Is there a cure?"  Her answer - "No."  We were referred to Dr. K to discuss Mito further.  This was now the second most devastating day of my life.  The first being the day he started experiencing seizures.  But this will all be trumped by the news we receive on October 5, 2010.

29 months - We met Dr. K and dicussed the possiblity of Trace having Mito, future medical testing, sleep issues and a lot of other things.  She ordered a Brainstem Auditory Evoken Potentials test, Sleep Study, Muscle Biopsy, and other genetic tests and labs. 

30-34 months - Too many tests, new specialists and new issues to write.  Still having seizures.  Development is at 12-18 months.

October 5, 2010 Trace is diagnosed with Mitochondrial Disease.  


Please educate yourself & help spread awareness of Mitochondrial Disease - for this little guy's future and all others affected by this devastating disease.  They need a CURE!!

My HERO, Forever & Always

Hope, Love, Courage &Faith,
Laurie
 



Wednesday, September 12, 2012

Fun at the Beach

We had a fabulous weekend at the beach.  It was kind of a spur of the moment trip as it wasn't even planned until 5 days before.  I still can't believe we actually did it.  But we did and it turned out to be some amazing & much needed family time! 

Friday - After a lovely battle with traffic, we arrived at San Luis Resort about 7:00 PM.  The place was beautiful! 

View from our 16th floor balcony

Trace was excited to ride the elevator as usual.  He overlooked the balcony at the spash spash and was excited.  We opted to not take him swimming as it was already past his bedtime and didn't want to ruin anything for Saturday.  So room service for dinner, birthday flowers for me from my sweet hubby, and hanging on the balcony enjoying the view.

Nightime pool view

Rainforest Cafe Volcano Erupting

Saturday - We headed down to the pool about 9:00 AM.  They had a waterslide, which Thomas took Trace down at least 15 times.  The child could have done it about 15 more, but Daddy was worn out :-) 




So we all headed across the street to the beach for about 30 minutes.  Trace loved the waves!  He pretended to jump them and laughed so hard he could barely stand. 


Next we headed back up to the room to clean up and have lunch at Rainforest Cafe.  I wasn't sure how Trace would do for this.  He usually hates being in restaurants - maybe the loud crowded environment, maybe the fact he could care less about eating, maybe all the above.  Well he did great and loved everything except the monkeys.  Good thing we chose not to sit by the gorillas :-)  Thanks big Sis for that advice!  We all enjoyed our food and then rode the river ride.  It was a really neat ride and we all enjoyed it- with the exception of the monkeys who received a very loud NO! everytime we passed. 


Rainforest Cafe River Ride

After lunch we headed to tour the Bishop's Palace (yes we're pushing it a little with Trace).  It was beautiful and Thomas and Peyton really enjoyed it.  I had seen it as a child on family vacays.  Trace did good and we managed to get out of there with not one thing broken or one screaming fit! 

Peyton at Bishop's Palace

We drove down the strand since it was so close.  It was pretty hot, so we parked and made only one stop - LaKings Confectionary.  Good choice - Peyton loves Ice Cream which they had aplenty and Trace was in awe at all the chocolate.  We bought a few pieces of chocolate, ordered some chocolate malts and rootbeer floats, then the meltdown happened - no, not the ice cream.  I took Trace out, but that only made it worse.  So back in we went and he was able to show me what he wanted, thank goodness.  They had one of the machines where you smash the penny and all he wanted to do was turn the crank.  Wish he could have just told me that before all the screaming and crying.  So with goodies in hand, we headed back to the hotel where Trace & I napped and Daddy & Peyton hung by the pool.  Really pushing our luck, we went to Gaido's for an early dinner at 5:30.  Okay I'll admit I was scared we had hit Trace's threshold, but Thomas managed to get down his last bite of food without rushing before having to take Trace out of the restaurant.  Peyton and I enjoyed the rest of our amazing dinner and back to hotel we went for more spash spash.  Then some much needed nigh, nigh for the little guy and more balcony time for the rest of us.

Sunday - One more quick trip to the pool, which was surprisingly warm.  Then another across the street to the beach, not so warm.  A cool front pushed through late Saturday night.  Trace was cold and blue, but didn't seem to mind at all.  We didn't let him stay in for more than 5 minutes and we all headed up to shower and pack up to leave :-(  I all of a sudden started feeling sick.  Not such a pleasant ride home to say the least.  Finally made it home and to bed I went.  Thomas made me chicken noodle soup and I was feeling much better by evening.  I was so happy I didn't get sick on Saturday though.  Peyton had it on Tuesday and so far so good with Trace and Daddy. 

So that was it for our spur of the moment family trip.  It was amazing to get to spend so much quality time together!  We are already looking forward to going back!


Hope, Love, Courage &Faith,
Laurie
 



Thursday, September 6, 2012

"Putt" an End to Mito

“Putt” an End to Mito

October 26, 2012
Stephen F. Austin Country Club
San Felipe TX

I’m excited to announce the 2nd Annual Wehring/Schaper Invitational Golf Tournament benefiting the UT Mitochondrial Center of Excellence!!

The tournament is held in honor of my son Trace and his best buddy Hudson Schaper, who battle mitochondrial disease.  These two little boys are true Warriors!

Trace & Hudson receive care from the UT Mitochondrial Center of Excellence.  They provide comprehensive services to aid in the diagnosis and management of mitochondrial disease.  The UT Mito Center performs research in the field of mitochondrial disease, investigating novel treatment approaches to this devastating disease.  I have a profound love for this team who works to give my son, and all affected, the best quality of life.  They are compassionate & brilliant!  For more information, please visit www.utmito.org.

Every 30 minutes, a child will be born who will develop a mitochondrial disease by the age of 10.  We all have mitochondria – they exist in nearly every cell in the human body.  They generate 90% of the energy the body needs.  Mitochondrial disease occurs when mitochondria fail.  The affected individual may have any combination of symptoms including strokes, seizures, gastrointestinal problems, swallowing difficulties, failure to thrive, blindness, deafness, heart and kidney problems, muscle failure, heat/cold intolerance, diabetes, lactic acidosis, immune system problems and liver disease.  The symptoms range from mild to severe for each affected person.  There is NO CURE for Mito – but there is HOPE.    

For more information about registering your team or becoming a sponsor please email me or comment below.  Again, THANK YOU for helping Trace get closer to a cure!

We are inspired by your love & friendship, by your concern & support, and by your participation in helping raise awareness & research funding for mitochondrial disease.

 Mitochondrial Disease
     Awareness Week
September 16-22, 2012









Hope, Love, Courage &Faith,
Laurie

Monday, August 20, 2012

Special Needs Equipment

Last week at Trace's doctor appointment it was discussed that he needs a medical stroller and bigger bed.  Trace has officially grown out of his baby stroller and crib.  Shocker I know since he is almost 5 years old.  I'm happy to see that they have lasted this long!  It's just not safe for him to be in either anymore.  I will be honest and admit I knew it was coming, but was putting it off as long as possible.  I've always thought if I put if off just a little longer Trace will be able to get himself around good & learn to sleep in a normal bed.  It's the part of me that yearns for my little boy to have a normal life. 

The medical stroller must last for 5 years.  You just don't get to decide you don't like it and go out and buy another.  Well I guess you could if you had a few thousand $$ to throw around.  This means I have to think about what may be 5 years from now.  That's scary.  The fact is he may need extra equipment by then and the stroller must be one to accomodate those needs and grow with him. 

The decision on which bed to pick is easier.  The Sleep Safe Bed seems to be our best option.  It will safely contain him, is equipped so oxygen use is not a problem and doesn't look like an animal cage.  Our biggest decision with this is where to put it.  As of now, his crib is still in our bedroom.  It's just the easiest option, as Trace wakes up at least 3 times a night.  I don't think the bed will fit comfortably in our room.  So we have 2 options:  (1) move Trace to his room or (2) add on to our bedroom.  I'm going to move him to his own room as it's the most sensible/easiest option.  I know it will be hard for me as I'll be walking up and down the house several times a night.  Sounds lazy, but I already know how hard it is with him in my room - especially on those nights he's up 7 times! 

I pray all of this works out and I make the right decisions.
 
Hope, Love, Courage &Faith,
Laurie
 




Saturday, July 21, 2012

Happy Anniversary

Today marks 6 years of being married to my wonderful husband Thomas.  I remember standing on the beach in Cabo San Lucas like it was yesterday.  It was the most amazing day!  Really, it was a dream come true.  I will sum up the last 6 years with these few words - love, learning, patience, laughter, joy, heartache, hugs, tears, excitement, change, and triumph.  Our life hasn't exactly turned out like what we imagined that day on the beach, but together we've made it through it all.  Thanks for standing by my side through this journey.  I love you Babe!  Wishing us many more years together!! 

  















Hope, Love, Courage &Faith,
Laurie