Wednesday, November 28, 2012

Thanksgiving & Updates

I'm not even sure where to begin here, so much has been going on since my last post.  I started November with 1 doctor appointment on the calendar.  I was extremely excited about that due to the rarity.  It quickly turned into 8 appointments all in the medical center.  Let's just say I'm broke from filling the car with gas and parking alone! 

Trace has continued to do well.  He had some labs drawn this month, which I feel certain will all come back normal.  He received his flu shot on November 7th.  He did well with it, only having a few small seizures and low grade fever.  Three days after the shot he acquiried a runny nose and cough.  He still has it, but hasn't progressed into anything more.  It just takes him a really long time to get over things.  It doesn't help that I've had to discontinue use of his Veramyst due to some terrible nose bleeds the last few weeks.  I guess we're going to have to discuss some other options with Dr. P next week.  Trace has been repeating everything lately.  He's like a little parrot!  A couple of cute examples - "love you" (getting better everyday), yelling "check" over and over again at a restaurant (which in Trace language sounded like suck - real fun!), and "oh man" (oh nee in Trace language). 

Peyton received some great news last week.  After giving 17 viles of blood for numerous labs (more than I've ever seen ordered and believe me I've seen a lot), chest xray, echocardiogram, and a biopsy she has been diagnosed with erythema nodosa.  This form attacks the fatty tissue of the body.  This is a much better diagnosis than what they had earlier thought which attacked arteries and some organs.  I'm so very thankful for this!  I never wanted her to have even the smallest thing wrong, but I'll take this over those really awful things any day.  She's going to be just fine - and that feels so good to say. 

On to Thanksgiving - This year we chose to stay home.  After all the craziness that has been going on, I didn't have it in me to go anywhere.  I just needed some quality time with my hubby and kiddos.  It was a great decision for all of us.  We cooked our first Thanksgiving dinner, which turned out delicious!  Trace didn't partake in the food - his tummy wasn't feeling the greatest and there is no getting him to eat when he's like that.  So it was chocolate pediasure for our little Mister.  I was sad because I made him some special dishes to enjoy - oh well maybe next year.  He didn't eat anything until Saturday, then he pigged out on Thomas' cheese enchiladas. Which he would not eat off a spoon, only Thomas' fingers :-)  I'll never understand that child.  Unfortunately, I'm terrible at taking pictures and forgot to take any of our Thanksgiving - oh well maybe next year :-)  Seems to be the story of my life lately.  Thomas and I sat by the fire that evening and talked about what we were thankful for.  We have so many people and things to be thankful for.  After my best friend gave us a little scare this month, it made us appreciate even more how lucky we are to have her in our lives.  I'm so dependent on her because no matter what's going on in her own life she has always been there for me.  I only wish to one day be as great of a friend as she has.  We have a beautiful, warm, functional home for our family.  We have each other - no matter how hard times get - we haven't given up on each other yet!  That's a real accomplisment with all the stress of our everyday life.  Our everyday life - no matter how hectic, stressful, and worrisome it may be - it's also full of strength, joy and love.  Our two beautiful children - the biggest blessing of all. 

Not the best post but I'm finding it really hard to have any spare time to update the blog right now.  One more appointment before the end of this month and then on to December, which as of now only has 3 appointments scheduled.  Really hoping to keep it that way!  The next post should be better - I'll be posting on "Putt" An End To Mito 2012.  I'm so excited to be presenting the check to the Mito Clinic next week.  I don't want to say how much yet because I want it to be a surprise to them, but yes it is bigger than last year!!!!!!  Thanks again for all of your support, it means the world to so many children.

Hope, Love, Courage &Faith,

Monday, November 5, 2012

Halloween 2012

Well I have to say Halloween 2012 was a success!  Trace actually understood the concept this year, which made things so enjoyable for him.  Dr. Trace would start to stand up in his wagon before it was good and stopped.  I helped him out and he went as fast as he could, smiling the whole way, up to the house to receive his candy.  I spoke for him, but he did sign/say lots of "tank oohs" :-)  He was so cute and scored more candy than ever needed for someone who's tummy can't handle too much sugar.  I of course let him completely overindulge himself.  That's one of the best parts about being Mommy - overindulging my kiddos.  I think I smiled more than Trace that night.  As I rocked his fidgety little body to sleep that night, happy tears welled up in my eyes.  I couldn't believe what I had witnessed my little Mister accomplish that evening and with such joy on his face.  Two years ago I wasn't sure anything like last night would be possible for my Mister.  I guess he showed me!!  Here are some pictures from our Happy Halloween!

Helping Sis make scary cupcakes

Sis helping Dr. Trace get ready

I can't believe he let us put the mask on, even if only for a few seconds!

He even held his own pumpkin this year!

Loaded up and ready to head out

He wasn't even scared of this guy - last year different story

No time for chatting Mom - more candy

Last pic of the night - One happy little Mister

Hope, Love, Courage &Faith,