Tuesday, October 30, 2012

My Healthy Child

What's up with my healthy child?  At the beginning of October Peyton came to me with what she thought at the time were 3 bruises on her shin.  I joked and told her to try not to be such a klutz.  A week later she had these so called bruises up and down both legs and one arm.  She was experiencing pain when touched and swelling.  She had also been complaining of stomach cramping and feeling like she was going to pass out.  I felt this was some sort of inflammation of her glands or blood vessels - definitely not bruises or a rash.  I took her to the pediatrician the following morning.  He examined her and said he hasn't seen it in 30 years.  "It" turned out to be Polyarteritis Nodosa.  An autoimmune disease which causes inflammation of the arteries, among other things if not treated properly.  This didn't suprise me, or alarm me for that fact.  Honestly I laughed and said only the weirdest of the weird for my children!  He said "Well Laurie they are YOUR children."  Ha Ha doc!  He told me to give her ibuprofen and call back if she runs fever or vomits.  I took Peyton to lunch and did some research.  I didn't like what I read regarding long term effects of the disease.  There were also better treatment options.  Peyton has had some problems with use of ibuprofen in the past and taking as much as he prescribed can't be good for that.  I decided we need a second opinion.  I called Trace's immunologist and she referred me to rheumatology.  Peyton will be seeing the rheumatologist Dr. K, who works in the clinic with Trace's specialists.  I know this is the best place for her to be.  During my week of inpatiently waiting to see when Dr. K could fit Peyton in, I called the appointment line to see when his first available was. It was 1 year for new patients!  I guess Mito has it's perks!  Peyton's appointment is next week so we'll see what happens. 

On Friday, Trace's mito specialist attended our golf tournament benefit for the clinic.  I was able to show her Peyton's legs and arm.  She let me know that a lot of siblings of mito patients have autoimmune issues.  She also assured Peyton she doesn't have to worry all weekend because she doesn't have Mito :-).  I honestly think Peyton was a little relieved to hear that.  I don't blame her - what she has seen this disease do to her brother and other children would scare anyone.

So that's that - my healthy girl - not so healthy right now.  I have to give her some props though, she's one tough cookie.  She has continued to cheer & dance as much as her body allows.  She had to miss cheering at the game Friday due to the pain and swelling.  She has never missed cheering at a football game.  She's cheered through fever, flu, stomach ache, torn ligaments, you name it.  I know the only thing that got her through missing the game was being at her brother's golf tournament.  She didn't miss the pep rally though!  I love that crazy girl!!

Hope, Love, Courage &Faith,

1 comment:

  1. So sorry to hear this news about Peyton, and so glad you were able to get her a quicker appointment than 1 year! I hope you can get a treatment plan going so she can get back to cheering and feeling well!