It's been over a month since I've written anything. I have so much to say I could write for hours. But unfortunately I don't have hours. The purpose of this post is solely to journal Trace's latest illness and hospitalization. I could easily forget important details (as shocking as that may sound!!) if I don't get it down before something else happens.
Friday 04/05/13 Trace did not want to eat dinner. This is not unusal for Trace, especially since he was experiencing a lot of gas. I didn't think much of it. I went about our evening routine and got him ready for bed at 6:00 PM. He had a wet diaper at that time. I put him to bed at 6:30. He woke up about 7:30 and drank about 4 oz of water. Throughout the night he woke a couple of times for a few sips of water. He did not eat during the night, which he usually will do about 12:00 - 3:00 AM.
Saturday 04/06/13 Trace woke about 6:00 AM and seemed in a happy mood. I was tending to the dogs and making meds in the kitchen when I heard him fall in the living room. He had an atonic seizure and feel and hit the left side of his face on the wood floor. I picked him up, consoled him and he was postictal for about 30 minutes. At 6:30 AM he vomited. At 7:00 AM he drank part of his mito cocktail. He would not drink but 6 sips of juice after 7:00 AM. I noticed he had not wet his diaper yet. He always has a wet diaper within 15 minutes of waking. With the seizure and vomit I guess the diaper wasn't high on the priority list. Since he had no urine output, refused to drink anything and vomited I decided it was time to take him to the ER. I got us all packed in case we had to stay but hoped we didn't.
Saturday Afternoon - I put Trace in the car around 12:00. He drank about 3-4 oz of juice about 30 minutes into the drive and immediately vomited it up. I had to pull over and clean him, change him, and clean the carseat the best I could with baby wipes on the side of the road. Not so fun. I just kept thinking please God don't let me get this if it's a virus. I don't want to be sick with Trace in the hospital. Been there, done that, miserable. We arrived at CMHH and were immediately sent back. Did the usual stuff, metabolic labs, IV fluids, etc. All labs looked good with the exception of ammonia (high). Trace still had no urine output and a bolus was ordered and administered in 30 minutes. He finally had a wet diaper about 30 minutes later. It had been a total of 22 1/2 hours since he last urinated! Crazy for my child who blows up an overnight diaper about every 2 hours!! We were told Dr. K wanted us to stay overnight to run fluids and watch him.
Sunday 04/07/13 Trace did well overnight and had a wet diaper. He continued the good trend and we were sent home late Sunday afternoon.
I have kept him home from school this week due to his immune system being down. He did attend private therapy on Tuesday, but was very low energy and didn't get much accomplished. He had an appointment with Dr. P on Wednesday. That will be a whole other post.
I hope I can find some time soon to post about Easter, a couple of big doctor appointments, and all the other new things going on in the Wehring family. Oh, and maybe even include some pictures - but I have to download them first! So for now this is it :-)
Thanks for all of your prayers for my little Mister!
Hope, Love, Courage &Faith,Laurie