Memorial Weekend Fun

We had a great Memorial Day weekend with family.  Memorial weekend is always when the water trampoline is brought out.  Trace wasn't able to enjoy it last year, but boy was it a BIG hit this year.

He rode the slide at least 100 times - what a little water bug!  

Trace spent most of the weekend in the lake or pool, he wasn’t able to be outside without being in water.  It was just too hot, even with the cooling vest. 

We attempted a boat ride, which only lasted about 5-10 minutes.  Trace overheated very quickly and was just screaming.  I felt so bad for him.  I didn’t think it would happen so quick, but I guess I’m still learning.  When we got him back in the house he couldn’t even sit himself up and immediately went to sleep.  After napping he woke ready to go – for half an hour and was tired again.  I guess getting so hot just took a toll on him.  I’m going to try out a patch he can wear to tell me if his body is overheating.  I'm hoping they work since Trace can't tell me.  Other than that, the weekend was a blast.  The kids had so much fun – and so did we!!  Can’t wait to go back and make more great memories. 

Congrats to my star Peyton!!  She will be playing Amber in next years school musical Hairspray.  I can’t wait to watch her light up the stage!

Good Immunology Visit

Trace had a visit with his immunologist this week - and we received good news!  His titers are up after the Pneumovax shot he received in March.  I was so relieved because this shot was the reason Trace was in the ER last and really wanted it to work.  Vaccines scare me, probably because one day after receiving his 12 month vaccines Trace started having seizures and our whole world changed.  I know he needs them and understand why they are so important.  Having to watch him have multiple seizures and high fever for days isn't exactly easy though.  But back to the visit.  Trace was having tummy troubles accompanied by non-stop crying and screaming.  Thomas & I held him down so she could check his ears, nose & throat - he wasn't having any part of that, but I don't blame him.  Thomas had to take Trace out so Dr. P & I could hear each other talk.  Dr. P felt so bad for him.  I assured her it wasn't her fault and we discussed how good all his labs looked - yeah!  Trace was feeling a little better after riding the elevator several times (and stinking it up, which all other passengers probably thought was Thomas).  Dr. P and I thought it was very funny and she reminded Thomas not to do it again when we left.  She cracks me up!  It's not very often we get to leave the medical center with good news, so it was a really great day for us.  In other good news, results came back from the genetic labs for cystic fibrosis and he tested negative.  Good news twice in a week - truly amazing!

That evening Peyton was presented an award at school for UIL Oral Reading: Poetry.  We were so proud as she is only a freshman and competed against freshman - seniors.  She had to read four pieces of her choice with expression and differentiate her voice for the characters.  She loves to perform and it shows.  It was very special because one the pieces she chose was written by someone with mitochondrial disease.  Tomorrow she's having a movie night, which means lots of teenagers at our house, kind of scary, but they always make us laugh.

Some pics for your enjoyment from last weekend